Hi everyone. I apologize as it’s been a while since I last posted a blog. But we’ve been a little busy!
Samuel has been home now for just past two weeks and he’s doing great. The first few days, he had a surprised look on his face and I’m sure he wasn’t really clear on where he was, what was going on, etc. But he quickly settled in and he’s really going through some good changes that are noticeable by all.
First, he’s smiling a lot more. It doesn’t take much to get him to put a grin on his face. He’s also a lot more active and playing with his toys quite a bit during the day. He still sleeps a good portion of the day, which is needed for development, but we like to see him interacting so much. He’s also cooing loudly, which seems to indicate his vocal cords are thinking about starting to act normal. He’s still a quiet cryer, with little sound, and when he sleeps he has lots of grunt-like noises.
Both boys have their cribs in our bedroom, but earlier this week we decided that Samuel makes too much noise at night, so we moved him to his own room. We setup a wireless camera that’s focused on him, and so we can see his pulse-ox monitor.
Speaking of that pulse-ox monitor, it goes off regularly, but it’s almost never related to a desat or brady. Usually it alarms when there’s a bad signal or no signal. He does get a little antsy and drop into the low 90s or high 80’s when he’s getting his diaper changed, or when he’s upset about something. But otherwise he’s proving it’s not tremendously necessary.
We do notice that if we take his oxygen away, he does drop to max into the mid-90’s. He’s only on 1/4 liter of flow per minute, which is the equivalent of about a cup of air being pumped into him every 60 seconds. It’s not much at all. In fact I can’t even really feel it coming out of the oxygen machine. But it seems to make a difference for him so we’ll keep it going and check it again in about a month.
Samuel’s feedings are proving to be really easy to administer. We hook up him at 9am, 12pm, 3pm and 6pm for 80mL of formula that’s pumped into his belly over a 1-hour period. Then at 9pm we put him to bed and set the machine to pump 465mL of food into him at 55mL per hour. So that’s a continuous feed from 9pm – 6am the next morning. He seems to take it ok, and his “button” is working well. We keep it clean each day and we’ll get it changed out in a couple months. We change his nasal cannula weekly and we change his feeding bag and venting bag daily.
We’re pretty sure both boys are teething now. We can see inside Sammy’s mouth and it looks like it could be the start of a tooth coming through. But we’re not certain. He certainly drools a fair amount. And Jacob drools a lot and is fairly cranky. Dr. Nash says it’s not necessarily an indication of teething, but they could be. Only time will tell.
Dr. Nash was over twice to see Samuel and to make sure everything was going well. The first time he visited, on the 5th, Samuel weighed 11 pounds, 4 ounces. Then just under a week later, he was 11 pounds, 10 ounces. We also weighed Jacob on the 11th and he was 12 pounds, 10 ounces with all his clothes on. We think he’s actually closer to 12 pounds 2 ounces. Either way I think we’re to the point where we can take out his premie insert for his car seat.
We celebrated the boys’ 5-month birthday on the 9th and their adjusted 3-month birthday on the 12th.
Grandpa Dave and Grandma Melinda visited this week for a few days and had great fun holding and playing with the boys. Grandpa Dave promises to come back for their 1-year birthday, and we’ll watch the Miami Dolphins game that weekend together, all cheering for the Dolphins. This is significant, since my dad is a life-long Dolphins hater who promised Samuel that when he got healthy he’d change and become a fan. I’m not so sold that he’ll be rooting for the Fins, but we’ll see.
Thursday marks three months since Charlie passed away. I still haven’t heard anything from the Contra Costa County Medical Examiner about the cause of his death. We think about him every day and miss him terribly. Life is definitely not the same without him.
Anyway, we’re having as much fun with the boys as we can have, and I think the best thing to do at this point is just share a bunch of photos over the past two weeks. Enjoy!